Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Saturday, July 14, 2012

Hey, deja vu...

Really missed talking at you...

Been a while...I have missed you my friends! I think I had a bit of a mental vacation. I was reading, as you all know, about Autism. In my search for information, I realized that it is entirely possible...likely...that I am raising 11 Autistic children. I am exhausted, as if somehow giving what we are living through a name makes it somehow harder. It's not. It's always been hard. But now I am convinced that regardless of the fall out, I need to have a professional step in and help with actual diagnosis, referrals for school, and other assorted minutia in the life or any family that has 11 kids with challenges. We started the summer with good intentions. I was going to home school them lightly, focusing on organizational skills which are needed across the board. Follow it up with test and note taking skills, which would be necessary where ever they are schooled. Finally, I would dip into some literature about the civil war and a Note booking study on the same. I hoped to follow this up with a trip to some Civil War sites in PA when we took our annual holiday to see Grandma. However, by one hour into day one, we quit. My children basically said that they were never going to home school and why do we have to be so different from everybody else. And can we all get iPhones...I figured it was going to be a long hot summer, but I had no idea...I was stressed. I think I lost my words. That made me very sad. How about those kids who don't have their words in the first place. I felt so helpless.


Cha-cha...changes...

To the end of subsidizing a robust treatment plan and being stricter with our whole food regime and babysitters, sigh, I decided to look for a job :o) Yes, being the mother of 11 children is a Full-Time Job, but I am an old mommy with a chronic disease. I have already spent more than 16 years of my life being a SAHM and now I want to go out!!! Even if it's just to a job. I tried having a position where I could beef up my writing and hope that went somewhere, however, my first two foray's were somewhat unsuccessful...I think I need better equipment!! A little more software. In order to that, I need a job. I know my husband would probably do this and he is entirely supportive, however, feeling a little sheepish...like my 6 year old when she get stubborn...My want to do it by myself!! In my research for the articles for Autism, what struck out at me is, wait for it...there is really a shortage of qualified teachers in the United States! OK, in North Texas anyway, and I am not moving back to Scranton!! Investigating grad school and entertaining enrollment counselors was fun, but I also found out that TX (and a few other states) has programs to help individuals with bachelors' degrees segue into teaching. Awesome! In a few days, I was signed up and getting started. I have to admit I had a bad moment when I sent an email to Penn State asking to have my transcript forwarded to iTeachtexas. I asked the enrollment counselor what grades were required assuring her that while my bachelor's grades were probably not stellar (I had a great time in college, and that's about all), I had at least 12 masters' credits that were all A's. She actually hung up on me when I said that about having a great time in college. Probably thought I was a crank. Anyway, because of said grades, I am only really qualified to teach Special Ed. Shawn thinks that is wonderful. I have to wonder how that would be any different than summer with my kids, but so be it...It may all be moot anyway. I mean, how can I teach? I have 11 children! I immediately change the look of my blog, utilizing a picture. I wanted to add the tag line of the actual photo amended just a bit..."You don't scare me. I have 11 children." I deleted it in the end. I really don't want anyone to think I am making light of our situation, but there you have it. My life in a nut shell. We canceled the trip to see grandma. I went with three of the girls. I decided then that I really, really need to move on to my plan. Have you ever had a child put ice cubes down your shirt while you are driving 70 mph on a crowded highway. Welcome to my life...
before the road trip, Relaxin' in the car!


And finally, the more things change...

I missed my blog, and I missed you...hey I have seven subscribers now. I am planning on going back to its original intent...talking about God, and Mass, and annoying people with my firmly Catholic viewpoint. Did you miss me....digressions and all! In support of that goal I am starting two other blogs so this can stay firmly about Catholicism, my 11 crazy kids, and eating nutritionally dense food. I'm baaaack...

 

Friday, May 25, 2012

Autism Speaks...Now It is Starting to Scream

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Hey, have you missed me? I have been kicked in the butt by life. My children have entered another birthday phase. Add to that the end of school, spring football parties, and finals, well...I was done. My disappearance was probably amplified by my promise to deliver a second part to my last post on Autism. After all the research for my last post, I was so proud. I diagnosed my kids and figured out, among other things, their inability to succeed in school. Not only that, I had been investigating going back to school and was examining the choices at Penn State Online. I was shocked by all the new course offerings. One was a certificate course in Autism. Really? I had to Google it and there are many new programs and businesses starting up. That's great...when the crushing burden of caring for all the children who are being diagnosed and will conceivably be unable to live a normal life...marry...have children. At least we will have a more educated population to care for them. Established programs for them to live in and be educated in. I started to seriously consider the Autism program at Penn State. I could really make a difference in my boys' lives. I could help them to gain necessary skills. Then later I could join a program and help other kids...make a difference. My hold up, the one that had kept me from considering Autism initially was a belief that autistic children have some type of disability in the social skills...communication. All my boys are very popular and have no trouble making or keeping friends. Long story, short (and when was the last time you ever heard ME say that!): the good news is my boys aren't Autistic. Since I was going to be an Autism professional I decided to check out the DSM guidelines. Nope, not a one. Nada. OK, let's check Aspergers...nothing. Not even a little PDD...what the heck. In frustration I checked Learning Disability in the DSM and my goodness, there it was. It explained my kids problems to a T. But why not Autism.
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I have also read...a lot...about natural cures to heal autism. I will develop this next time :o) I promise I won't stay away long...but there is much anecdotal research to suggest that Autism, along with other autoimmune diseases such as Fibromyalgia and MS, are caused by inflammations in the body. These can be exacerbated by vaccines, among other things. The government refuses to assign that as a possibility, going so far as to continue to expand the recommended schedule and increase limitations to objections. A memory nagged at me and I went searching for their vaccination records. Nope, they were not vaccinated as infants. My only vaccinated on time child was my son I adopted privately right from the hospital and possibly my oldest. The others were all at least a hardy 2 year old before getting shot....er, figuratively, of course.
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So, while its not Autism, I will begin looking into resources for LD...how could I not know that this was a stand alone disorder like Dyslexia. I though it was just a category for disorders like Dyslexia, but I digress. Whew...that probably saved me thousands of dollars. Then I thought about institutions that designed programs to combat the glut of children, mostly boys, affected by Autism. What about the other areas of Human Services...in home providers, homes, institutions, doctors...There is training for professionals, there are educational companies...my quick Google search yielded 1,310,000 hits. How many people are counting on these poor children to sustain their own families in a depressed economy. What about the individuals who profit from the vaccines in the first place. I realize that some individuals make considerable money from the research and development of them, however, there must be an army in just supplying America with all the vaccines we are required to submit are children to, even just in the first year. Is it wrong for them to want to make a good life for their own families...

Families wanting to earn a good living -vs- a generation of boys who may never marry, gain independence, or support their own families. Hmmm....tough call.
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Wednesday, May 2, 2012

222 > 24,000...the new math?

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Like the Bird Flu that kept us out of school for what seemed like forever, news of illness breaking out in large numbers is scary. Visions of communities patrolled by armed guards and gates...I have read the thrillers, seen the movies. I have a healthy fear of outbreaks of illness! So when I saw this article, reported by USAToday, about a measles epidemic in the United States, I instantly had to click on it.  
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Lately, every time I turn around, someone is complaining about their boy's behavior. Everywhere I turn I see that boys especially are on the spectrum. I have 11 adopted children, 6 who are boys. All the boys have behavior problems and even though I am an experienced mother who has a bachelors and some graduate credits in social work and spent my entire career in parent education, I am not that familiar with autism. I assumed it could not be my child's disease. However, I have sought out information and am finding that behaviors who look more like my boys are indeed being diagnosed as autism. Or would if I took them to be evaluated. When I heard the crazy stats about them, 1 in 88 which is probably understated, I said, well that's my answer. Research suggest that the Autism epidemic is caused by vaccines. The government is in complete denial. There are entire blogs posted about the behavior of the CDC, who mandates that children take more and more immunizations. The doctors who develop the immunizations and consequently profit from them. Even the support agency that is making tremendous dollars to find a cure, Autism Now--where is the incentive to find a cure when it is paying for all their salaries? Many parents still believe vaccines are the cause, but it is disputed firmly by Thomas Insel and other experts during a recent panel called "Information from New Research into Autism." During the recording, a caller said that her child was not autistic when he was born and brought up the fact that the 2 month old vaccines contain a toxic load of well over the safe limit of 20mcg. Insel quickly denied a link, claiming,
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"Studies] have indicated that there is no such link. These most recent numbers, if there was any lingering doubt, should speak to that fact, because ...the theory was that thimeral, an additive in vaccines, was responsible and thimerosal has been removed from virtually all vaccines ... you would have expected those numbers to go down. ...In fact, they've gone up.”

On the other side of the debate, Rep. Dan Burton, who's grandson was diagnosed with autism in the late '90's said, "I’m not a scientist, but the Committee heard from many credible scientists and experts who are convinced that mercury is a contributing factor; and the theory is no less worthy of exploration than the theories being propounded today that the pregnancy weight of the mother or the age of the father at conception influences whether a child becomes autistic. When you have no idea what is causing a disease, policymakers and scientists should never be afraid to investigate any plausible theory. In fact, researching possible environmental factors is a central component of today's research on autism."

I am not a scientist either, but I can do math if I have a calculator nearby. Lets see, we are positive that it isn't vaccines, but we have no idea what it is. Credible scientists believe that autism is caused by vaccines, yet we don't give every hypothesis a chance. We eliminate one even though it has been found by more than one scientist and countless anecdotal evidence by parents who have pictures, tapes, and family witness to speak to the fact that their children began exhibiting symptoms only after vaccinations, but we will discard that idea as completely not possible and explore every one of the other 80,000 possibilities it could be in search of the answer. But what do I know. I mean they have 222 cases of confirmed measles last year. Measles is a tough disease and all those whiny parents of  autistic kids refusing to vaccinate are going to bring back every epidemic...222 kids with measles vs. 24,000 children born this year who will be diagnosed with autism.
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Lost in all the numbers is one clear fact,

If you look at those numbers, the increase and recognize how many of those kids will become adults, we ...also need to be thinking about how we prepare the nation for a million people who may need significant amounts of services as they are no longer cared for by their parents or as their parents are no longer around.

Yes, Mr. Insel, what are we going to do...isn't that your job...


Please join me next week for part two... and don't worry, I'll be watching...
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